Over the years, I have faced a lot of backlash for my thoughts and ideas that take me forward in life. From the day I could see how surgeons can revive a dying patient on an operating table to the day I saw a child with severe spastic cerebral palsy take ten steps during gait training without a break: one thing became clear to me. Individuals with disabilities and challenges that concern their everyday health have always been redefining how we relatively look at success and failure. Across all domains. They have forever now been challenging societal stereotypes about succeeding in a task or failing to succeed in a task. History is the witness to who were observing, listening or cheering.
Watching beautiful stories, countless of them from the sidelines, sometimes being a minute part of these efforts, it is a job satisfaction that can never be described in words.
My last physical therapy case as a physiotherapist was a young stroke victim (38 years old) with right side hemiplegia. He was originally from Rayalaseema. He was also undergoing other treatments during the same time. I particularly state this here because I want many of my non-rehabilitation profession friends and family to know a fact.
Recovering from an illness, rehabilitation after accidents, re-training to handle a sudden disability: all these processes are complex and need so much help. It is never just one service provider.
One of the very common things you will see happen in countries like India is, rehabilitation services that families strive to provide for their loved ones often times include a spiritual component. And he was a believer in the help his parents were bringing to him from a spiritual perspective. And I think that is why working with him has left an indelible impression of my mind. How he was motivated to heal and was willing to stay involved. Often times it is so much dependent on the individual.
In about 10 days I think:
- He progressed from not being able to hold the pen to being able to hold the pen.
- From not remembering me to remembering every morning that I was his PT and that my name started with either P or B (even though he couldn’t yet write them down).
- From needing full support to take a few independent steps to being able to stand up from a chair independently.
- From tearing up every time I helped him hold a spoon to laughing out loud every time he dropped it down and I had to collect the glass beads back.
For someone like me who was trying very hard to heal from a terrible time in that college, working with him was the best thing to have happened to me then. I will never say he inspired me. I hate to apply that term to his situation or any other rehabilitation scenarios. His effort and the pain he battled everyday to make it through each session, they are indescribable. Nothing is inspiring when you see a person struggling every breath to take a step or to lift a small wooden block. For people who are really involved in their work as rehabilitation specialists, those are what I call the gut punch moments. The real moments when you are constantly reminded to not do a lousy job (because you had an annoying drive to work and for reasons like that) because someone’s ability to eat independently or self-care without dependence in future is solely relying on the chance that your care and training will be helpful to them.
Today I went through one of those evenings where you sit in open cold and you cry your heart out! You cry because that is the best thing you can do for yourself and that is only thing in your control. 15 minutes into the crying, face in my hands, palms wet with tears, I see his face when we last time said bye byes. I remember so well. He held my hands in both his hands and kept patting them while talking. He said to me, “You don’t know how much these few days will always mean for me in my life. You have the ability to be patient with people like me. You should continue to do the good work that you have learnt after all these years in college. Your problems will vanish someday. So choosing to leave the profession because of what people did to you because of politics is a wrong decision. And anytime you want to give up, remember my face and tell yourself that he will not appreciate it”
Why I wrote this today:
Social media was thrust upon our lives with no advance notice. It has now become a big part of our lives. For someone like me, I very carefully choose what I post on my social media (primarily because I don’t want to pain people with the challenges I have to face like everyone else). There have been several days like this in my #GradLife so far. When I have felt completely alone as the only Indian women ever to be here doing what I have done so far. So don’t ever assume that what I am trying to learn here has been easy so far. It is not as rosy as it looks on the social media. In extreme situations when possibilities for success look bleak, I remember his therapy days and ask myself.
Is it harder than the therapy days he persisted through for progress?
The obvious answer I hear my mind give me is NO.
The amount of kicking and screaming I have done to life every time I faced a challenge will blow everyone’s minds. Over the years the way I have been defining success and failure in my life have changed. The seeds for those thoughts though, were sowed during those therapy days when I worked with that young man from Rayalaseema.